Thursday, January 10, 2008

Take As Needed

There is nothing I can do when multiple sclerosis rob me of some of my cognitive. I can take Provigil to battle ms fatigue invade my body with a wave of extreme fatigue. I can also take a milder anti-depressant as I have in the past to fight ms depression.

Finally, there is the Solu-Medrol infusion that works when my ms symptoms cause my body to break down like Humpty Dumpty.

After my Solu-Medrol infusion Saturday, I felt great my body no longer felt like Humpty Dumpty. During my office visit Friday, my neurologist gave me her reason why she thought it would be a good idea for me to take Lexapro and Tizanidine daily. I explained to her why I did not want to take Lexapro and why I take Tizanidine on an as need basis. I finally gave in and told her I will start taking Lexapro once a day and Tizanidine twice a day starting Saturday January 05.

My living hell began Monday morning, mentally I felt as if I was going out of my mind and physically I could not get out of bed. I took back control of my life Wednesday. I do not try to play doctor on myself, but no one knows my body as I do. I called my neurologist and informed her on how I was feeling and as of today I will not be taking Lexapro anymore and I will only take Tizanidine, as I needed it.

It did not make sense to me to take pills that had me totally incapacitated mentally and physically. I went from living life to having no life and that is not me. I was not going to continue to take prescription medication that altered my mental state and robbed me of physically getting around no matter what my doctor thought. Life has been fine for me wearing a Fentanyl patch, taking Lortab as needed for break through pain, and injecting myself daily with Copaxone. Mentally, I am coherent and physically I could get around taking what I call my fabulous three. I also knew if I had any other symptoms that arise from multiple sclerosis I have an arsenal of medication as needed because at one point I was taking more pills than I can count on a daily basis because I was told to do so.

Because I was told by my doctors to take certain prescribed medications I almost lost my life twice. I am damn if I do and damn if I don't. I rather be damn if I don't from this point on.



All I want to say is....good for you!!

Merelyme said...

i have been reading about all the drugs for MS and there are so many it makes the brain boggle. i am on nothing so far by choice and because i am not so bad off at all yet. but i am reading with great interest how other people fare with all the drugs. thanks for sharing your experience with us.

Blinders Off said...


It feels GOOD to be back to what I consider myself. No telling where I would be if I didn't stop taking those pills.


You are very fortunate not to be on any meds right now. People bodies are different and how they prescribe the MS drugs to us does not work the same for our individual body type.

I am convinced NOW that it is up to each individual to take what works for them and not take what is causing more harm regardless of what the doctors say. I am sticking with my fabulous three and Solu-Medrol infusions from this point on, until they stop working for me.

Michelle said...

I'm glad you listened to your body before the side effects got any worse. I have only tried a few medications, not always with good results. When I tried Baclofen for pain, I was just starting the first titration when my pain actually intensified and my entire face felt crooked. I stopped taking it immediately. Upon reading the prescription information sheet, I was distressed to read that you shouldn't cease totally, but lower the dosage over a course of time as determined by the doctor. I don't recall reading that prior to taking it, or I might not have even tried. Luckily, I didn't suffer any dire consequences. Take care of yourself.
Expand your mind - visit Brain Angles

mdmhvonpa said...

I try not to think of the cognitive issues. (Rim-Shot here?)

get it? bwa-ha-ha-haaa