Monday, September 24, 2007

Words To Live By

Do It Martina McBride


You CAN spend your whole life buildin'
Something from nothin
One storm can come and blow it all away
Build it anyway

You CAN chase a dream
That seems so out of reach
And you know it might not ever come your way
Dream it anyway

God is great but sometimes life aint good
And when I pray
It doesn't always turn out like I think it should
But I do it anyway
I do it anyway

This worlds gone crazy
And it's hard to believe
That tomorrow will be better than today
Believe it anyway

You can love someone with all YOUR heart
For all the right reasons
And in a moment they can choose to walk away
love em anyway

God is great but sometimes life aint good
And when I pray
It doesn't always turn out like I think it should
But I do it anyway
Yeah I do it anyway, YEAH, YEAH

You can pour your soul out singin'
A song you believe in
That tomorrow they'll forget you ever sang
Sing it anyway
Yeah sing it anyway, YEAH, YEAH

I sing
I dream
I love anyway, yeah.

I Don't Think I Could Go On If Something Happens To One Of Them

A parent worst nightmare is receiving a phone call in the early morning or late night. My two oldest daughters were in separate car accidents. The first accident was in the first week of September, the second one was this past Thursday. My heart dropped each time I received that dreaded phone call and to hear your grandson over the phone crying Mommy my head hurt have you imagining the worst.

I THANK GOD my daughters and grandson did not suffer serious injuries. I never want to know what its like to loose a child before I leave this earth.

Sunday, September 23, 2007

You Have To Keep Pushing

I submitted my name over a month ago to volunteer at the sixth U. S. Marshall Service Fugitive Safe Surrender pilot program in Memphis. My day to volunteer was on the very last day of the program which they told us at training it would be the busiest day of the program. When I know I have to do something I try not to exert myself so I can reserve my energy. My husband wasn’t too please when I told him our Friday night date night would have to be on Tuesday, Wednesday, or Thursday. You know how it is when a tradition is broken for a man, but we had fun leading up to Friday for my day of rest.

Of course I can not tell multiple sclerosis not to act up. Sometimes I wonder why ms act up when I have definite commitments. For some odd reason it never fails…the day before I have a commitment my entire body feels like it short circuits. I have the most annoying nerve tingles, pain, and limb jumping the night before my commitment. There was a time I would cancel out and each time I did that I would go into a depression because I felt as if I did not keep my word to someone or I was letting down my family or friend if my commitment was related to them.

It is a victory each and every time I push thru the agony of this unpredictable illness. I had a wonderful time at the Fugitive Safe Surrender program and met some amazing people. The best part of my volunteer experience Saturday was seeing citizens taking advantage of the Fugitive Safe Surrender program to surrender in the hopes of having a second chance in turning their live around. I saw all types of people from every walk of life, the expression on their faces and the temple of their walk when they first walked in was entirely different when they were walking out.

Memphis should be proud of how successfel the program was in its city they have beat the previous five states with the number of citizens surrendering. Cleveland in August 2005 saw 850 persons surrender over four days. In the November 2006 FSS Program in Phoenix, 1,320 persons surrendered. In Indianapolis in April, 530 persons surrendered. In Akron in July 2007, 1,125 persons surrendered. In Nashville in August 2007, 561 persons surrendered, and in September 2007 Memphis 1,600 persons surrendered.

David G. Jolley U.S. Marshal, Western District of Tennessee and I still managed a smile after a long day. I know he was glad the four days were over so he could get some much deserved rest.

To top off my day I had the opportunity to see the Blue Angels fly over my subdivision.

Friday, September 21, 2007

Morphine and MS

The patch starts at 25mcg and of course that is what I was started on. It was too much for my body to handle after three weeks of continuous morphine going into by body. I talked about how good I felt on the morphine patch and how it turned on me. Well, I am happy to annouce the patch comes in a lower dose of 12mcg…it just came on the market. My pharmacist told me when I inquired if I can cut the 25mcg patch in half. The lower dose patch was so new neurologists and doctors did not know the morphine patch came in a lower dosage. I called my Neurologist and informed her about the lower dosage and we decided to see if having a lower dose patch would work for me.

On September 27 it will be one month I have been wearing a 12mcg Fentanyl/Duragesic patch. I have not been feeling the daily nerve tingles through out my body and my pain is about non existent. I only had to take Lortab 10mg every now and then for break thru pain. I am able to function more now that I do not have to take the numerous pills I had to take prior to wearing the patch.

I know what is working for me may not work for others, but that is why I blog and talk to others about what works for me because what is working for me might just work for you. My goal was to not take so much medicine on a daily basis and for the last month wearing the lowest micro gram of morphine has helped me reach that goal. I now only wear the patch take my Copaxone injection daily and take one or two Lortabs a week. That is a far cry from taking 10 different prescriptions on a daily basis.

The only problem I have now is getting use to taking the injections again after stopping for thirty days when I considered taking Tysabri. I am not going to lie… it still hurts like hell every time I push that needle, but Copaxone is working and I have to do what I have to do.

Is There A MS Scam Going On

I am one of those consumers who despise telemarketers. Telemarketers are pesky and annoying and now days most of telemarketing contracts are with prisons or another country.

I might have been one of the first consumers to sign up with the National Do Not Call Registry. My telephone numbers and name should not go off the list until 2010. That is why I couldn’t understand why this telemarketing number 1-877-213-7608 was calling my house. That number start calling my house September 10 asking for my husband who was out of town. I knew it was a telemarketer so I politely told them we are on the do not call list and not to call again.

The pesky *&#* %&@@ called my house everyday exactly at 8:00am and 6:00pm. I became so pissed I final dialed that 800 number and asked in a not so pleasant tone who the hell were they and why are they still calling my house after I asked them not to. Low and behold it was a foreigner who couldn’t speak good English; I was outrage to this intrusion of my privacy.

I decided September 19 to call and report the number. As luck would have it a telemarketer from that same number called before I called to report the number. This time she acknowledges me before asking for my husband. This was my opportunity to find out who the hell is behind this 800 number intruding on my privacy. I was floored to find out she was calling on behalf of the National MS Society and was seeking a donation from my husband because records showed he donates to the MS Society. I challenged her on why she was calling because I have MS and I am an active member of the National MS Society and I raise money every year during the National MS Society Walk Fundraiser and I never known them to do a phone fundraiser.

My first question to her was, “Why is the National MS Society soliciting by phone when as long as I have been involved they never solicit money by phone?” She couldn’t answer it to my satisfaction. I also asked, “If this is a National MS Society fundraiser campaign why would they call contributors who contribute to me on my behalf during the MS Walk." I told her, "I know for a fact my husband and others who are on my list of contributors do not want to be bothered by a phone fundraiser drive." The telemarketer was dumbfounded and all she could say was,” I will not be receiving anymore calls."

I called the Mid-South MS Society headquarters in Nashville MS Society and told them what has been going on for the last week and a half. They too were surprise a phone call fundraiser was going on in their name. I gave them the 800 number and I was told they were going to look into it and let me know because it is not their policy to call and ask for money. I told them, “I did not appreciate it and I know the people on the list I turned in who contributed to the MS Society on my behalf would not appreciate being called and asked for a donation when they have already donated this year.” I also let them know that if this is a new policy of theirs it will hurt my chances for receiving donations next year from my contributors if they are harassed by the aggressive telemarketers who were harassing my household with unwanted phone calls.”

Finally, if this is a new fundraiser drive for the National MS Society, they need to put a stop to it NOW and SHAME on them for having an aggressive telemarketing firm call to beg for money on the behalf of the MS Society. I and many others work our tails off to raise money during the MS Walk and Bike fundraisers and to solicit off the list we turn in to the society is WRONG on many levels.
Mainly, NO ONE wants unsolicited pesky, annoying telemarketers calling them.

Until I know differently I am going to assume the telemarketing calls from someone stating they are representing the National MS Society as a SCAM.

Sunday, September 9, 2007

Thanks Mom

My mother was and is my role model on how to be a woman. There is not a price or value of a woman’s worth. My mother worked full-time and always had a homemade dinner prepared for my father and us. She kept a clean house and made sure me and my siblings did our part. She was a disciplinary who did not take any bullshit. As long as you told her the truth she had your back. If she found out you lied you would have a severe price to pay…trust is everything. She also had the courage to walk away from my father because he did not appreciate her. To this day my father is still in love with my mother and my ex-husband is still in love with me. Like most men, my Dad and Ex did not know they had a good woman until it was too late. My mother has been divorced from my father for 29 years. She said she would never marry again and she didn’t, but she has been happily involved with the same man who I know love her and treat her like a Queen for the past 24 years.

I married young and the only good thing out of that marriage was my beautiful daughters. When I divorced at the tender age of 28, I told myself I would NEVER get married again. A woman tends to loose her identity when she thinks she is in love at a young age. My mother recognized my first husband was stripping me of who I was. She never interfered in my marriage, but she did say this to me, “You are not the daughter I raised; you need to find yourself again.” I did not understand her statement in the beginning, but as the years went by I realized what she was talking about and I made the painful decision to walk away from my daughters Dad.

That was the best decision I ever made in my life. Life is too short to be in an unhealthy relationship for the sake of children. I allowed myself to fall in love again and I must say when you are not looking for love that is usually when you find real love. After dating my present husband for a few years and turning down proposal of marriage because of my first bad experience. I took that leap of faith and followed my heart and married my soul mate in 1995. My old school ways, sex appeal, and personality is what attracted my husband to me. I have my Mom to thank on how to treat a man like a man should be treated and in return that man would treat a woman like a woman should be treated.

Because I stayed true to who I am and knew what I wanted in a man after my divorce, I am the happiest person in the world. I didn’t think I would ever in this life time find a man who didn’t feel threaten by me and who would loved me with his heart and soul. Women dream of falling in love with a man who treats her like a Queen a man who is secure, strong, protective, love of his family, and hardworking. My husband is my heart and soul and I thank God everyday for blessing me with the kind of man I have always prayed for. He is away on business for a week and I am missing him already, I pray he have a safe trip to Virginia and back home to me.

He is all the man I need!