Bee Venom Love

I am sure every mother feels their daughters are the best. I know I do, I thank GOD for my jewels. I am thankful that I lived to see myself in my girls; there was a time I did not think I would be around to see them grow up to be the beautiful women they are today. Having them in my life has made it easier to live with this ugly disease called multiple sclerosis.

Everyday is a struggle getting up; everyday is different from the next. During the past two weeks, it took every ounce of energy I had to go on with my day against the pounding punches of PAIN. Many days I wanted to relieve myself from this excruciating pain by putting on a morphine patch.

I wanted it so bad, but I refused to give in because I NEVER want to experience this again. I cannot hide anything from my daughters; they seem to know when I am having a hard time with multiple sclerosis. I opened my email one day and received the following from one of my daughters:

Mom I saw that honeybee venom is a therapy that treats MS pain. I saw this on "Radical Hollywood Remedies" last night and did some research and found this link about it. On the special, it says the honeybee therapy cost $75 a session. I suggest you try this and I will pay for your first session. I suggest this because I truly believe you should try natural remedies to lure yourself off the drugs. It doesn't hurt to try natural procedures since God put them on earth for us to use to heal our bodies to live a longer healthier life. Everyone please let me know all your thoughts on this.

http://health.discovery.com/centers/althealth/beetherapy/bkgsclerosis.html

Then there was this reply email from another daughter:

I think it's an absolutely wonderful idea! I'll try it with you!


I appreciate my daughters looking out for me and wanting to pay for me to have some bee venom because of their love for me, I do not know if I can do this. I am paranoid about trying something new. I know I do not want to go back to wearing morphine patches again and my doctors do not want to prescribe Lortab like they use to...thanks to all the accidental overdosing in the entertainment industry.

I survived this many years living with pain, with God’s help, I will make it some more years. However, I am open to natural pain resources; I am not saying I will never try bee venom as a natural pain remedy. I am old school and I have to get over my paranoia trying new drugs or natural remedies…blame it on my Daddy I get it from him :-)

Catching Up…Sorry About Being Away So Long

Thank GOD School Is Out

April 27 was my last day of class...NO MORE Linear Equations, Scientific Notations, Powers, Polynomials, and their relatives.

Blame them for keeping me from blogging :)





I Hope This Is Not My Last Mid-South Chapter MS Walk

I was not going to walk this year because I was upset the walk was moved from Shelby Farms to H. W. Cox Park in Collierville. I had a change of heart and decided to participate two weeks before the April 4 walk in Collierville. I formed my team and set a goal to raise $500, I thought that was reasonable because of the economy. That goal was achieved less than a week so I raised it up to $1000.00. I am happy to say my team and I raised over a $1000.00 for the MS Mid-South Chapter.

Unfortunately, I am sad to say moving the walk to Collierville was not the same as having the walk in Shelby Farms. It was very noticeable that the attendance was not the same (I guess others felt how I felt in the beginning). The atmosphere at the Collierville walk uninviting and unfriendly. If the Mid-South Chapter decides to continue the MS Walk in Collierville, this year will be my last year participating, but I will continue to donate to the MS Society.

The Mid-South MS Walk always been at Shelby Farms before Collierville start having a walk on the same day about 2 or 3 years ago. The Chapter excuse having it at Collierville’s H.W. Cox Park was it did not cost them and it cost $3,000.00 to have it at Shelby Farms. That is poor excuse to take it away from a traditional site. Free is not always best…less teams signed up, less volunteers’ and less vendors participated. ..most importantly LESS MONEY WAS RAISED.

P.S.

You all know I did not hold back on the survey sent to me by the National MS Society.




NO THANKS DOC

I am no doctor, but in my opinion having morphine entering your body 24/7 is worst than popping a Lortab as needed. I am so use to having pain and I now have a very high pain tolerance, but that tolerance level is penetrated every day. Lortab is prescribed 1 tablet every 4 to 6 hours I take no more than 7 tablets a week. One tablet a day to keep the pain at a level I can tolerate.

I like my neurologist, but I disagree with her preferring to have me on morphine than having me take Lortab, as I need it for pain. She seems to believe Lortab is more addictive than morphine. Hmmm, am I missing something here, I wonder what is the hang up with my neurologist and Lortab.

I am the one who lives with the freaking pain and I should have a say in what I choose to put in my body. There is no freaking way I want to go back on morphine and go through the withdrawals I had when I decided I no longer want morphine entering my body. Hell, It was me having heart palpitations, severe constipation, and feeling as if I would stop breathing any minute while on morphine. Yes, I felt no pain, but I was paying a high cost not to feel...A DECISION HAD TO BE MADE! I prefer to feel than to stop breathing at any moment. The choice is mine and I will make that very clear at my next appointment or I will find another neurologist.


Finally...



My Baby Girl is moving back home. She is not moving back in the nest, she is moving to be near her Mom, Pops, and sisters for a couple of years before she head off to Harvard for her Masters and PHD. I am happy as a kid in a candy store!

Morphine and MS

The patch starts at 25mcg and of course that is what I was started on. It was too much for my body to handle after three weeks of continuous morphine going into by body. I talked about how good I felt on the morphine patch and how it turned on me. Well, I am happy to annouce the patch comes in a lower dose of 12mcg…it just came on the market. My pharmacist told me when I inquired if I can cut the 25mcg patch in half. The lower dose patch was so new neurologists and doctors did not know the morphine patch came in a lower dosage. I called my Neurologist and informed her about the lower dosage and we decided to see if having a lower dose patch would work for me.

On September 27 it will be one month I have been wearing a 12mcg Fentanyl/Duragesic patch. I have not been feeling the daily nerve tingles through out my body and my pain is about non existent. I only had to take Lortab 10mg every now and then for break thru pain. I am able to function more now that I do not have to take the numerous pills I had to take prior to wearing the patch.

I know what is working for me may not work for others, but that is why I blog and talk to others about what works for me because what is working for me might just work for you. My goal was to not take so much medicine on a daily basis and for the last month wearing the lowest micro gram of morphine has helped me reach that goal. I now only wear the patch take my Copaxone injection daily and take one or two Lortabs a week. That is a far cry from taking 10 different prescriptions on a daily basis.

The only problem I have now is getting use to taking the injections again after stopping for thirty days when I considered taking Tysabri. I am not going to lie… it still hurts like hell every time I push that needle, but Copaxone is working and I have to do what I have to do.