Sunday, February 3, 2008

What Should I Do

IPIR happened again tonight the only difference is that it lasted for two minutes. It is times like this when I just do not know what to do.

I have an appointment with my neurologist next Tuesday, but I know I have to call and tell her about my experience tomorrow. It may be time for me to stop injecting myself daily with Copaxone. If that is the case, I am not sure what form of therapy I will try to slow the progression of MS. I know I cannot take Avonex because of the severe side effect I experienced from drug. I never tried any of the others, but I do not know if I want to.

What should I do? For now, I am not going to worry and I will wait and see what my options are.


Diane J Standiford said...

I am one of the "lucky" IPSR/Copaxone. Called medics first time(1999), then Dr. said it would only happen once(though Shared Solutions scoffed at that), I think it happened 2 more times in 2000, then never again. I asked my new neuro, told her what old Dr said and SS--she got mad at SS,"WHY do they kept telling patients that?" My gut feeling was--this can NOT be good. I now take Copx on/off; I don't have exacerbations anymore and am just waiting for repair. I HATE ALL the current MS drugs except for aspirin and Solumedrol. I trust NONE of them.CRABS/Novantrone. But I did take Copaxone 1999-2003 daily, only one IPSR. I think the other little feelings were anxiety--that it would happen again like the first time. I was just DX with a valve click...NO heart problems in my family...I'll never know if...

Blinders Off said...


I am seriously thinking about giving up Copaxone for a while. Experiencing an IRIR is very frightening! I did not expect to experience another after being told it was rare and may never happen again.

I also need to make sure there is nothing wrong with my heart because heart disease is very BAD in my family. Last time I went through a series of tests all was well, but that has been a few years ago.