Sunday, December 13, 2009
Marie Claire Should Have Thought Twice About Running This MS Story...
I was sent an email to read and give my opinion as a blog post on the following article, "I Had an Unthinkable Disease...And Made Myself Better" written by Kate Milliken, as told to Abigail Pesta, that appeared in Marie Claire January 2010 magazine.
Yes, my story is controversial. People worry that I'll spread false hope. Once, a woman who had suffered from MS for 30 years said to me from her wheelchair, "Don't tell me to put a Post-it note on my mirror—give me a break." Some say maybe I never had MS to begin with. All I know is that the doctors diagnosed it, and I have the before-and-after MRI scans to prove that a lesion had come and gone.
I continue to take the injections, along with a few vitamins.
First let me say, YES! Her story is controversial. It is also irresponsible of Marie Claire to publish the article of person who was diagnosis with MS and twelve months later they are claiming to no longer have signs of MS lesions. The storyteller did not say if she had her MRI's with and without contrast. There is a chance of having an MRI without contrast that will not show lesions clearly that is why when given an MRI it is best to have it with contrast so there will be no dispute of the reading.
I have an issue with the story teller stating in the article, "A day after my scan, I met with one of my doctors at Mt. Sinai, Dr. Stephen Krieger. His words floored me: No new lesions. As for the lesion that had caused all my problems? It had "faded significantly," he said.
"Is it smaller?" I asked him.
"It's actually so faint, the radiologist didn't recognize it," he said. "That's as good as it gets."
I have to believe she was given an MRI without contrast. It is irresponsible to claim she no longer have MS lesions. If she no longer has lesions or symptoms of MS, why continue to take daily Copaxone injections, one of the drugs that slow down the progression of MS. You either have MS or you do not, as far as I know, as of today there is no known cure for MS.
I am happy for her that she is no longer having an MS exacerbation. There is nothing wrong with positive thinking and adjusting your lifestyle to live with an unthinkable disease, but is wrong and irresponsible to claim to no longer have MS lesions because of holistic treatment, but your still taking a daily disease modifying drug injection.
What are your thoughts?