tag:blogger.com,1999:blog-4399606123599003743.post3322837527455500378..comments2023-10-28T07:53:47.692-05:00Comments on Living-With-MS: My Goodbye Letter From CopaxoneBlinders Offhttp://www.blogger.com/profile/03109286529955936165noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-4399606123599003743.post-50441127822227298682008-04-24T22:10:00.000-05:002008-04-24T22:10:00.000-05:00I am at peace with my decision.I decided I want to...I am at peace with my decision.<BR/><BR/>I decided I want to go three months from the day I had my episode, enjoy my wedding anniversary and birthday in June before I start another treatment. Therefore, I should be starting my first Tysabri infusion around July 9 or soon afterwards. <BR/><BR/>I will do the required paperwork on my May 2 appointment and I will firmly let my neuro know regardless that I can start my first infusion in June I decided to wait until July.<BR/><BR/>Matter of fact since I have not been taking my daily injections, I have been feeling better. My energy level is up and I have not had to take Lortab for breakthrough pain while wearing my morphine patch. Oops, let me knock on wood because I said that aloud and I do not want to jinks myself :)<BR/><BR/>It is a pleasant to feel normal after a hair-raising experience. It has been a long time that I felt as good as I am feeling now.Blinders Offhttps://www.blogger.com/profile/03109286529955936165noreply@blogger.comtag:blogger.com,1999:blog-4399606123599003743.post-62691878839414551472008-04-23T13:42:00.000-05:002008-04-23T13:42:00.000-05:00Awww D,I am so proud of you for letting go of your...Awww D,<BR/><BR/>I am so proud of you for letting go of your fears... it can be so difficult at times to lay our burdens down at the cross, and not pick them up again when we leave.<BR/><BR/>And I am also glad that you are letting go of your fear of developing PML... FYI, the expert opinions of the New England Journal of Medicine have indicated that PML is attributed to <B>diminished immunosurveillance [not Tysabri]</B>. You can read NEJM article further by going to: http://tinyurl.com/2mhn82<BR/><BR/>Each MS patient is closely monitored monthly by administration of the Touch program... we have nothing to fear but fear itself.<BR/><BR/>Good luck D, please keep us all posted as to when you are scheduled for your first infusion (hint, drink plenty of fluids the day before your infusion).<BR/><BR/>All my best to you dearheart,<BR/><BR/>Lauren :)Laurenhttps://www.blogger.com/profile/18373904711547103825noreply@blogger.comtag:blogger.com,1999:blog-4399606123599003743.post-336555174905325412008-04-22T22:09:00.000-05:002008-04-22T22:09:00.000-05:00Sometimes, you need to make those quality of life ...Sometimes, you need to make those quality of life decisions ... I did, and I do not regret it one bit.mdmhvonpahttps://www.blogger.com/profile/05319386081400881905noreply@blogger.com